Stagwell's (STGW) The Harris Poll Unveils First-of-its-kind Global Hemophilia Survey on the Daily Challenges for Patients, Caregivers, and Providers

A groundbreaking global survey conducted by The Harris Poll, sponsored by Sanofi, has shed light on the hidden emotional burdens faced by individuals living with hemophilia. The findings reveal that people with hemophilia often struggle with mental health challenges such as anxiety and depression, while also highlighting a significant communication gap between patients and their healthcare providers.

The survey, titled ‘Hemophilia Life Stages and Changes Global Survey,’ involved over 2,700 participants from 11 countries across four continents. It aimed to gain a comprehensive understanding of the current state of hemophilia care worldwide and the evolving needs of individuals living with the condition.

One of the key findings of the survey is the emotional toll that hemophilia takes on patients. Over half of the respondents admitted to hiding their symptoms at least once a week, with 68% avoiding sharing their condition with friends for fear of being treated differently. The emotional burden also extends to mental health, as 59% of patients reported experiencing anxiety at least once a week, and three-quarters of hematologists revealed that their patients often feel depressed about their hemophilia.

Another significant revelation from the survey is the disconnect between patients’ desire to have a more active role in their treatment and the lack of inclusion from healthcare providers. While 83% of patients expressed a strong desire to be involved in the decision-making process regarding their treatment, only 35% believed that their healthcare providers adequately included them in these discussions. Additionally, a staggering 84% of patients expressed a wish for more treatment options.

The survey also highlighted some interesting differences across countries, particularly in terms of the ages at which hemophilia patients receive care and the ease of discussing the emotional impact of the condition. These global and generational distinctions provide valuable insights for caregivers, patients, healthcare professionals, policymakers, and patient organizations worldwide.

Sanofi, a company deeply committed to the global hemophilia community, sponsored the survey to better understand the needs of individuals impacted by the disease. Their mission is to advance a model of care that provides the right support at the right time, allowing people with hemophilia to focus less on living with the disease and more on living the lives they choose.

The Harris Poll, a global consulting and market research firm, conducted the survey to reveal the authentic values of modern society and inspire leaders to create a better future. As part of Stagwell, a challenger holding company built to transform marketing, The Harris Poll has been tracking public opinion and social sentiment since 1963.

The findings of this first-of-its-kind global hemophilia survey are expected to drive action and dialogue, leading to innovative solutions that improve care for individuals living with hemophilia. By addressing the communication gap between patients and healthcare providers and providing more treatment options, the aim is to alleviate the emotional burdens and enhance the overall well-being of those affected by this lifelong condition.

Hemophilia is a rare, lifelong condition that impairs the blood’s ability to clot properly, resulting in excessive or spontaneous bleeds into joints, muscles, and soft tissues. It can lead to joint damage, chronic pain, and a significant impact on quality of life. Sustainable access to diagnosis and treatment remains a challenge for many individuals with hemophilia worldwide.

The survey’s comprehensive details, including methodology, audience demographics, and global survey results, can be found at the provided link. The insights gained from this survey will contribute to ongoing efforts to improve the lives of people living with hemophilia and ensure they receive the support they need.